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Diversified Innovations in the Health Sciences: Proposal for a Diversity Minimal Item Set (DiMIS)

Gertraud Stadler PhD*, Marie Chesaniuk MA* , Stephanie Haering MSc , Julia Roseman MSc , Vera Maren Straßburger Dipl.Psych. , Diversity Assessment Working Group, Martina Schraudnerg

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Abstract

Background: Science strives to provide high-quality evidence for all members of society, but there continues to be a considerable gender and diversity data gap, i.e., a systematic lack of data for traditionally underrepresented groups. Gender and other diversity domains are related to morbidity, mortality, and social and economic participation, yet comprehensive measures as well as evidence regarding how these domains intersect are missing. We propose a brief, efficient Diversity Minimal Item Set (DiMIS) for routine data collection in empirical studies to contribute to closing the diversity and gender data gap. We focus on the example of health but consider the DiMIS applicable across scientific disciplines. Methods: To identify items for the DiMIS across diversity domains, we performed an extensive literature search and conducted semi-structured interviews with scientific experts and community stakeholders in ten diversity domains. Using this information, we created a minimal item set of self-report survey items for each domain. Findings: Items covering ten diversity domains as well as discrimination experiences were compiled from a variety of sources and modified as recommended by experts. The DiMIS focuses on an intersectional approach, i.e., studying gender, age, socioeconomic status, care responsibilities, sexual orientation, ethnicity, religion, disability, mental and physical health, and their intersections. It allows for data sets with comparable assessments of gender and diversity across multiple projects to be combined, creating samples large enough for meaningful analyses. Interpretation: In proposing the DiMIS, we hope to advance the conversation about closing the gender and diversity data gap in science.

Diversity Assessment Working Group

Auma, Maisha- University for Applied Sciences, Magdeburg-Stendal, Germany

Banas, Kasia- University of Edinburgh, UK

Borde, Theda- Alice Salomon Hochschule, Berlin, Germany

Buspavanich, Pichit- Charité Universitätsmedizin Berlin, Germany

Dewey, Marc- Charité Universitätsmedizin Berlin, Germany

Di Maio, Sally- Freie Universität Berlin, Germany

Ditlmann, Ruth- Hertie School, Berlin, Germany Enarovic Ilona Charité Universitätsmedizin Berlin, Germany

Fischer, Marina- Charité Universitätsmedizin Berlin, & WZB Berlin Social Science Center, Germany Gellert, Paul-Charité Universitätsmedizin Berlin, Germany

Gerstorf, Denis- Humboldt-Universität zu Berlin, Germany

Grittner, Ulrike- Charité Universitätsmedizin Berlin, Germany

Gutsell, Jennifer- Brandeis University, Waltham, MA. USA

Hagelskamp, Carolin- Berlin School of Economics and Law

Henschel, Anna- Charité Universitätsmedizin Berlin, Germany

Herrmann, Wolfram- Charité Universitätsmedizin Berlin, Germany

Hilger, Caren- Charité Universitätsmedizin Berlin, Germany

Hövener, Claudia- Robert Koch Institute, Germany

Hunter, Emma-  University of Aberdeen, UK Iida Masumi School of Social and Family Dynamics, Arizona State University, USA

Keller, Lena- University of Potsdam, Germany

Kendel, Friederike- Charité Universitätsmedizin Berlin, Germany

Krumbholz, Charlotte Ariane- Charité Universitätsmedizin Berlin; Intergeschlechtliche Menschen e.V. Bundesverband, Germany

Licha, Matthias- Charité Universitätsmedizin Berlin, Germany

Mason, Kimberly- Charité Universitätsmedizin Berlin, Germany

Mata, Jutta- University of Mannheim, Germany

Mau, Steffen- Humboldt-Universität zu Berlin, Germany

Meuwly, Nathalie- Université de Fribourg, Switzerland

Moschko, Tomasz- Charité Universitätsmedizin Berlin, University of Tuebingen, Germany

 Müller-Werdan, Ursula- Charité Universitätsmedizin Berlin, Germany

O’Sullivan, Julie Lorraine- Charité Universitätsmedizin Berlin, Germany Radl Jonas WZB Berlin Social Science Center, Germany

Rathmann, Christian- Humboldt-Universität zu Berlin, Germany

Regitz-Zagrosek, Vera- Charité Universitätsmedizin Berlin, Germany

Rieckmann, Nina- Charité Universitätsmedizin Berlin, Germany

Rommel, Alexander- Robert Koch Institute, Germany

Salikutlu,k Zerrin- Humboldt-Universität zu Berlin, Germany

Shrout, Patrick E. - New York University, USA

Smith, Jamie- Charité Universitätsmedizin Berlin, Germany Specht Jule Humboldt-Universität zu Berlin, Germany

Stephan, Petra- Charité Universitätsmedizin Berlin, Germany

Stock, Christiane- Charité Universitätsmedizin Berlin, Germany

Wenze, l -Mine Andersraum e.V. Hannover, Germany

https://psyarxiv.com/bjyms/