Diversified Innovations in the Health Sciences: Proposal for a Diversity Minimal Item Set (DiMIS)
Gertraud Stadler PhD*, Marie Chesaniuk MA* , Stephanie Haering MSc , Julia Roseman MSc , Vera Maren Straßburger Dipl.Psych. , Diversity Assessment Working Group, Martina Schraudnerg
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Abstract
Background: Science strives to provide high-quality evidence for all members of society, but there continues to be a considerable gender and diversity data gap, i.e., a systematic lack of data for traditionally underrepresented groups. Gender and other diversity domains are related to morbidity, mortality, and social and economic participation, yet comprehensive measures as well as evidence regarding how these domains intersect are missing. We propose a brief, efficient Diversity Minimal Item Set (DiMIS) for routine data collection in empirical studies to contribute to closing the diversity and gender data gap. We focus on the example of health but consider the DiMIS applicable across scientific disciplines. Methods: To identify items for the DiMIS across diversity domains, we performed an extensive literature search and conducted semi-structured interviews with scientific experts and community stakeholders in ten diversity domains. Using this information, we created a minimal item set of self-report survey items for each domain. Findings: Items covering ten diversity domains as well as discrimination experiences were compiled from a variety of sources and modified as recommended by experts. The DiMIS focuses on an intersectional approach, i.e., studying gender, age, socioeconomic status, care responsibilities, sexual orientation, ethnicity, religion, disability, mental and physical health, and their intersections. It allows for data sets with comparable assessments of gender and diversity across multiple projects to be combined, creating samples large enough for meaningful analyses. Interpretation: In proposing the DiMIS, we hope to advance the conversation about closing the gender and diversity data gap in science.
Diversity Assessment Working Group
Ahmad, Aisha-Nusrat, Berlin University Alliance, Berlin, Germany
Auma, Maisha - University for Applied Sciences, Magdeburg-Stendal, Germany
Banas, Kasia - University of Edinburgh, UK
Borde, Theda - Alice Salomon Hochschule, Berlin, Germany
Buspavanich, Pichit - Charité Universitätsmedizin Berlin, Germany
Dewey, Marc - Charité Universitätsmedizin Berlin, Germany
Di Maio, Sally - Freie Universität Berlin, Germany
Ditlmann, Ruth - Hertie School, Berlin, Germany Enarovic Ilona Charité Universitätsmedizin Berlin, Germany
Fischer, Marina - Charité Universitätsmedizin Berlin, & WZB Berlin Social Science Center, Germany Gellert, Paul-Charité Universitätsmedizin Berlin, Germany
Gerstorf, Denis - Humboldt-Universität zu Berlin, Germany
Grittner, Ulrike - Charité Universitätsmedizin Berlin, Germany
Gutsell, Jennifer - Brandeis University, Waltham, MA. USA
Hagelskamp, Carolin - Berlin School of Economics and Law
Henschel, Anna - Charité Universitätsmedizin Berlin, Germany
Herrmann, Wolfram - Charité Universitätsmedizin Berlin, Germany
Hilger, Caren - Charité Universitätsmedizin Berlin, Germany
Horozoglu, Gülru - Charité Universitätsmedizin Berlin, Germany
Hövener, Claudia - Robert Koch Institute, Germany
Hunter, Emma - University of Aberdeen, UK Iida Masumi School of Social and Family Dynamics, Arizona State University, USA
Keller, Lena - University of Potsdam, Germany
Kendel, Friederike - Charité Universitätsmedizin Berlin, Germany
Krumbholz, Charlotte Ariane - Charité Universitätsmedizin Berlin; Intergeschlechtliche Menschen e.V. Bundesverband, Germany
Licha, Matthias - Charité Universitätsmedizin Berlin, Germany
Mason, Kimberly - Charité Universitätsmedizin Berlin, Germany
Mata, Jutta - University of Mannheim, Germany
Mau, Steffen - Humboldt-Universität zu Berlin, Germany
Meuwly, Nathalie - Université de Fribourg, Switzerland
Moschko, Tomasz - Charité Universitätsmedizin Berlin, University of Tuebingen, Germany
Müller-Werdan, Ursula - Charité Universitätsmedizin Berlin, Germany
O’Sullivan, Julie Lorraine - Charité Universitätsmedizin Berlin, Germany Radl Jonas WZB Berlin Social Science Center, Germany
Rathmann, Christian - Humboldt-Universität zu Berlin, Germany
Regitz-Zagrosek, Vera - Charité Universitätsmedizin Berlin, Germany
Rieckmann, Nina - Charité Universitätsmedizin Berlin, Germany
Rommel, Alexander - Robert Koch Institute, Germany
Salikutluk, Zerrin - Humboldt-Universität zu Berlin, Germany
Shrout, Patrick E. - New York University, USA
Smith, Jamie - Charité Universitätsmedizin Berlin, Germany Specht Jule Humboldt-Universität zu Berlin, Germany
Stephan, Petra - Charité Universitätsmedizin Berlin, Germany
Stock, Christiane - Charité Universitätsmedizin Berlin, Germany
Wenzel, Mine- Andersraum e.V. Hannover, Germany