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News from the Gender in Medicine (GiM)
Digital platform on inherited cancer risk funded with 4.3 million euro
In Germany, around 69.000 women and 700 men fall ill with breast cancer every year. Around 30 percent of these patients have an increased inherited cancer risk. For this particular group pf patients better treatment options are becoming more readily available. However, these interventions are most successful if the inherited cancer risk is discovered early on.
In a new project funded by the Innovationsfonds of the “Gemeinsamer Bundesausschuss” a new digital care platform for people with inherited cancer risk and their treating doctors will be developed. Specialist knowledge about breast cancer will be available through the platform and the network of carers and patients will be strengthened.
The scientists leading the project are based at the Gender in Medicine institute of the Charité University hospital, TU and HU Berlin. They want to investigate if the care platform can aid with early cancer detection and can improve the quality of life for patients. The experience of the project leaders with law and ethics surrounding digital technologies will be a crucial piece of the final product.
The digital platform will be funded with ~ 4.3 million euro over the course of four years. The Innovationsfonds usually facilitates projects that go beyond regular statutory health insurance. Should the pilot phase encourage it, the digital platform could be integrated into regular care in the future, where the focus could expand to other illnesses as well.
Dr. Friederike Kendel is particularly excited about the colloaboration with experts in medicine, ergonomics and law: “Digital transformation offers many exciting opportunities to improve medical care. However, there are clear ethical, psychosocial and legal risks associated with it, for which there are currently not many concrete solutions available. These solutions can only be found if we work closely together as part of an interdisciplinary endeavour.
Project partners at Charité, TU and HU
- PD Dr. Dorothee Speiser, Charité, Centre for Familial Breast and Ovarian Cancer
- PD Dr. Friederike Kendel, Charité, Gender in Medicine
- Prof. Dr. Markus Feufel, TU Berlin, Institute for Ergonomics
- Dr. Sven Asmussen, HU Berlin, Law
Also: BKK VBU, Deutsche Krebsgesellschaft e. V., ID Information und Dokumentation im Gesundheitswesen GmbH & Co. KGaA, Dr. Konrad Neumann (Biometrie, Charité); Prof. Dr. Getraud Stadler (Gender in Medicine, Charité)